Wednesday, June 5, 2013
My month in a nutshell
One month ago I woke up in the middle of the night to strangers in my bedroom. I was really confused and didn't know what had happened. I did not even know who Chris was. I did know that I needed to use the restroom and my social security number. I was loaded into an ambulance and informed about what had happened...I had a seizure and was not responding afterwards. I spent the day at the hospital trying to get my blood pressure back to normal and taking many tests to see if I had a tumor or any other obvious cause for a seizure. I was sent home to recover. My tongue was huge and I had bit through it several times. My memory was horrible. I couldn't even focus on a sentence without getting distracted. I felt like an adult crammed into a child's brain. I knew things but could not quite get to them, simple things like words. A week later I had an MRI, lumbar puncture, and EEG. They were horrible tests. I did find out that I am not epileptic. There was a small white spot on my brain but the neurologist thinks that is because I get a lot of migraine headaches. He prescribed a migraine medicine that also controls seizures. That was the worst thing I have ever done. You know when there is a mile long list of possible side effects with a pill, I had every one but two of them with this pill. At first I thought I was just having problems because we had just moved and I did too much for my body to handle, but I have realized that it was the pill that was causing to many problems. I told my doctor that I would rather have headaches constantly than not remember what I am saying, be too tired to do anything with my kids, or just feel like I am crazy all the time. I already am hating life because I can't drive for three months. I feel like I have lost any freedom I had. I also am mad because I wanted to do some fun things with the kids this summer. I stopped taking the pills and have started to feel like myself more each day. The headaches have come back but I am okay with that. I had been taking this medicine for 3 weeks and felt like a horrible person the whole time with the mood swings, anxiety, memory loss, swollen tongue, not being able to read, and sleeping over 12 hours every day. I have stopped taking the pill for 3 days and feel more like myself than I have in the last month. I will be meeting with an opthamologist soon because one of my optic nerves is swollen and that could have caused the seizure. Hopefully it was just a fluke and I will never have a seizure again or the opthamalogist will be able to detect something. I am also hoping that with me getting back to normal, I can do some fun thing with my boys before school starts again. I am so grateful for the many family and friends that have helped out during this hard time. We could not have made it through the last month without everyone's love and support.
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2 comments:
Oh Nov, I'm so sorry! I am surprised to read that this is happening to you, because something so very similar is happening to my friend up here as well. It is some crazy, scary stuff. I hope that you start feeling up to doing fun summer stuff soon. What a lousy way to spend a summer!
We need to get our boys together this summer!
How very scary that must have been for you. :( I agree with you about taking certain meds....sometimes the side effects are worse.
Hang in there and I am praying you get feeling back to normal soon. ((HUGS))
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